There was a little bit of drama for this little guy when Daddy accidentally stood on his feeding tube and it was attached to the Gtube, you know where I'm going with this. The whole Gtube, inflated balloon and all, came out of his tummy and there was formula gushing everywhere. We dashed to the car and I just so happened to have a Gtube kit in my car... hooray for that! It wasn't so bad (for me at least) to put the new tube in and blow up the balloon. I'll be happy if that never happens again. Daddy felt awful!! We went back in the restaurant and resumed our meal. Such is life in our family.
My family came over that night and we had Kamryn's favorite chocolate mouse cheesecake for desert.... this girl has great taste in deserts!!
I still can't believe our baby girl is 10!! This was also the last week of winter break from school. Kamryn goes back tomorrow and I'm going to be so sad. :( It's great to have her home and Owen loves the attention all day. Only 8 weeks until spring break!
This afternoon... Owen watched his first tv show ever!! He won't watch tv, in fact he won't even acknowledge that it's on. Whenever he's in the hospital, I try to find something (anything) that will keep him occupied for even a few minutes. TV just doesn't interest him. SO.. this morning we were at Blockbuster and I had some free rentals so I grabbed "Yo Gabba Gabba". It was a bit creepy for me, but Owen watched it for about 10 minutes and I got some laundry done. I call it a success!! Another little bit of exciting news is that Owen is almost caught up on his immunizations! He hadn't had any shots until August when I got a call from the transplant team at Stanford stating that the immunologists require ALL transplant patients to be fully immunized. Darn it. So we have been doing several shots every month to try to catch him up. Those shots, combined with his two synagisis shots every 28 days, have been making for alot of needles. He should be done with all of his shots in March and I will be so thrilled for him!
He never ceases to amaze me though.... every 28 days we walk into the pediatrician's office with a smile on his face. He chit chats with the nurses and is very helpful. Then the nurse brings in the silver tray with the needles on it and he gives us the helpless look.. .my heart breaks... he gets his 5-6 shots in his thighs... sheds a few tears.. and he's as happy as can be again. I don't know where he gets all his courage.
One last thing... we got our followup appointment scheduled with Stanford for the first week in May. It's so surreal to look at the big picture and realize that at some point, in the not so distant future, our family will be divided and Owen will be in need of a new heart. Things seem so normal now and the rest of it is like a dream.







