Halloween 2016

We missed some of our favorite Halloween traditions today, but we managed to make it fun anyway. Owen woke up late, took a bath, and then the docs rounded. We are just monitoring to see where things are going. He had an echo this afternoon and I'm sure I'll hear the results in rounds tomorrow (no news is good news?). We are just finding balance before making big plans. 

 Today was the big Halloween trick or treat at Stanford. They set up an entire lounge with costumes and the kids could pick anything they wanted. Owen already had his costume but we had fun looking. On the way back to his room, we stopped and got a dragon airbrushed onto his biceps....so cool!  Every department sets up tables on every floor of the hospital and kids go from table to table getting tons of loot.  It was a madhouse but we got through all four floors with two giant bags of stuff!  Thank goodness his nurse was required to go with us for monitoring because I could not have done that solo. Owen had fun, but was totally exhausted!

When we got back to the room, Owen slept through his echo and then took a two hour nap.  I ran to the RMH to check in and get my room key.  It always makes me nervous when he sleeps a ton, or says his stomach hurts, or when he just looks so tired.  I've been a little on edge today and I'm anxious to hear what his echo looked like.  Are we making the right choices with his medicine therapy?  I just want him to feel good

We did dump out all his bags and go through his loot this evening.  We talked to the fam back home as they were getting ready to trick-or-treat.  It was hard for both of us because we miss home already and it hasn't even been a week away.

Kam was steam punk and rocked it!  Logi was bones since he is obsessed with the bone song.  "The foot bones connected to the ankle bone..."  Future doctor perhaps?  They all had a great time with cousins.  Logi was in love with the candy and waving goodbye to everyone as they left each house.  He was just thrilled to be walking around at night people watching.  He is my active one!  

That is a wrap on Halloween and now we can move into the best holidays of the year.  Hoping for a healthier Owen and to be reunited with my fam soon.  This is hard.  

Owen was tired before 8 and fell asleep early.  Again...I may be on edge.  Then there was a code blue next door for a parent of a young patient...on edge.  Tomorrow is a new day and we will see how it goes. :). Happy Halloween!