Tuesday, April 19, 2016

Life is good. :)

I am so sorry I haven't had time to blog.  We have been super busy in the desert and enjoying the last of our Spring.  Temps will reach near 100 this week and then it's nothing but heat for the next six months.  I really need to do better about taking more photos as well.  My house is clean and my family is happy so I guess I'm doing something right. :)

Owen had a rough couple weeks.  He had inflammation in his bladder causing horrible UTI symptoms without the infection.  We spent an entire Sunday in the ER running tests and all they came up with was Hemmorhagic Cystitis but no source and no treatment as it's viral.  Stanford looked into it a little more and he came back positive for BK Virus.  Not sure if we need to treat as the bladder issue cleared up after a week on it's own and his kidney levels seem okay for the time being.

On a positive note... no more labs for TWO weeks!!  After a good six months of twice weekly labs, we finally got his levels where they need to be and hopefully they will stay there.  This little break in labs makes for a happy boy.

This week a mouth full of canker sores is wreaking havoc.  Mouth ulcers are a side effect of the Sirolimus medication he started last month.  Thanks to the advice of other transplant moms, we got him a script for magic mouthwash and it seems to help temporarily.  Pray those little monsters heal up quickly.. he is in pain and eating is not fun. 
We haven't done much with HopeKids lately but we did sign up for Bumble Bee Ranch this year.  We have gone in the past and Owen loves it.  This year was no different.  We spent a few hours on the ranch and enjoyed the Hummer ride, took Old Time photos, ate lunch and met some real cool families.




Kam has been super busy at school!  I can't believe they only have 5 weeks until they graduate from 2nd and 10th grade.  Kam has had multiple projects and next week is her dance concert week. She has lots of auditions coming up in the next few weeks as well.  She has been driving more and I think she may actually get her license this summer. 

Owen has been kicking butt in PT and OT.  His teacher is working him hard at home.  He doesn't want to go to 3rd grade at school so we are exploring options in addition to his teacher coming to the house.  We are trying to convince him to try out BoyScouts because Carson loved it as a kid.  Can't you see him in his little cubscout uniform?  Mostly Owen is looking forward to his biopsy in two weeks.. he just loves them!

Logi is growing up way too fast!  He is on the go 24/7.  He is doing animals sounds:  chicken -"bak bak", dog "heh heh heh (with his tongue out)",  cow - "moo", pig - "oooo ooo".  He loves to read books all day long.  He is the best helper around the house.  Vacuums, helps with dishes, mops, sweeps outdoors... he loves to help.  He eats like a champ and only refuses sweet stuff.  We seriously love this little man. Here is a little video of him dancing the other day.  He loves to get up and dance anytime Kam is choreographing... he is now addicted to Panic at the Disco. He mouths the words (no sound) and that means he wants us to put YouTube on. Enjoy...


Sorry I have been so bad about blogging.  Adding a 3rd child into the mix has totally changed my life.   It went from a little crazy to total chaos most days.  I enjoy spending my days at home with these two monkeys and I love my husband for allowing me to do it!  Life is good. :)